Support Resources
Organizations, crisis lines, support groups, therapy directories, and disability rights resources for brain surgery patients and caregivers.
Crisis Resources
If you or someone you know is in crisis, reach out now. You do not have to manage this alone.
988 Suicide & Crisis Lifeline: Call or text 988 — available 24/7, free, confidential.
Crisis Text Line: Text HOME to 741741 — available 24/7, free, confidential.
Organizations
American Brain Tumor Association (ABTA)
Education, support services, and research funding for brain tumor patients and caregivers. Free care consultation line, webinars, and printed resources.
National Brain Tumor Society (NBTS)
Research advocacy, policy initiatives, and patient resources for the brain tumor community. Strong focus on advancing treatment and improving outcomes.
Brain Injury Association of America (BIAA)
The leading national organization serving people with brain injuries. State affiliates, helpline, and extensive resource library covering rehabilitation, legal rights, and community support.
American Stroke Association
Resources for stroke survivors and caregivers, including recovery guides, support groups, and clinical information. Relevant for patients whose brain surgery involved vascular conditions.
Support Groups
ABTA Support Groups
In-person and virtual support groups facilitated by the American Brain Tumor Association. Regional groups and diagnosis-specific options available.
Inspire
Online peer support communities for health conditions. Brain tumor, brain injury, and neurosurgery communities with active discussion forums.
CaringBridge
Free personal health journals that keep family and friends updated during treatment and recovery. Reduces the emotional labor of repeated updates.
Local Hospital Support Groups
Many hospitals and neurosurgery departments run their own support groups for brain surgery patients. Ask your surgical team, social worker, or patient navigator about what is available locally.
Therapy & Rehabilitation Directories
Academy of Certified Brain Injury Specialists (ACBIS)
Directory of clinicians certified in brain injury rehabilitation. These professionals have specialized training beyond general therapy credentials.
American Congress of Rehabilitation Medicine (ACRM)
Research-driven rehabilitation organization. Resources for finding evidence-based rehabilitation professionals and understanding current best practices.
Psychology Today Therapist Directory
Searchable directory of therapists by specialty, insurance, and location. Filter by “brain injury” or “neuropsychology” to find relevant providers.
EMDRIA Therapist Directory
Find EMDR-trained therapists for processing surgical trauma. EMDR has Tier 1 evidence for trauma processing and can be adapted for medical trauma.
Disability & Workplace Rights
ADA National Network
Information, guidance, and training on the Americans with Disabilities Act. Regional centers provide free consultation on workplace accommodations, rights, and responsibilities.
Job Accommodation Network (JAN)
Free, confidential guidance on workplace accommodations for people with disabilities. Specific resources for cognitive and neurological conditions including brain injury.
Social Security Administration — Disability Benefits
Information on Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) for patients whose recovery requires extended time away from work.
Supplement Verification
ConsumerLab
Independent testing and reviews of health and nutrition products. Paid subscription provides access to detailed test results verifying that supplements contain what they claim.
IFOS / Nutrasource
International Fish Oil Standards program. Independent testing and certification for omega-3 supplements — purity, potency, and freshness. Look for the IFOS five-star rating when choosing fish oil.